Healthcare Webinars

The National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States as well as investigating the causes and risk factors for this disease. The Registry also connects persons with ALS with clinical trials and epidemiological studies, funds research domestically and globally, and has a biorepository (i.e., National ALS Biorepository) where persons with ALS can donate their blood and saliva for research. This webinar will inform and educate persons with ALS and caregivers the importance of joining and being counted. Persons with ALS are the heart of the National ALS Registry and their data allows researchers to gain insight and advance research on genetics, biomarkers, and environmental exposures. With your help, we can potentially determine what causes and implement prevention measures in the future.

Parents and caregivers are uniquely positioned to make a profound impact on their child's development by acting as intervention agents. This webinar will focus on parent-led interventions for promoting social and communication skills with young children with autism. The activities shared can be incorporated into everyday routines and play that parents and caregivers can begin now!

Discover an informative webinar on checkpoint inhibitors in cancer immunotherapy, exploring immune checkpoint inhibitors (ICIs), FDA-approved therapies, combination treatments and strategies to predict patient responses in cancer treatment. Since their initial approval in 2011 for metastatic melanoma, ICIs have changed the treatment paradigm in oncology. To date, eight ICIs and 35 ICI-based combination immunotherapies have been approved by The FDA across diverse tumor types. First-line programmed cell death protein 1/programmed cell death ligand 1 (PD-1/PD-L1) inhibitors have become increasingly common for the treatment of metastatic cancer, with significant survival benefits. Still, while a subset of patients exhibit deep, durable responses to these therapeutics, the majority do not respond to single-agent ICIs and many experience immune-related adverse events. To improve the efficacy and safety of ICIs and advance the understanding of the molecular pathways that cause cancer resistance, it is crucial to find new, effective and tolerable combination treatments. In this webinar, the featured speakers will explore the latest advancements in ICI and discuss strategies for expanding the use of these novel therapeutics. Join this webinar to discover insights shaping cancer treatment and learn about the impact of ICIs, patient responses and the future of ICI therapies.

In this insightful webinar, discover how electronic informed consent (eConsent) revolutionizes clinical trials through compliance, inclusivity, security, comprehension and engagement for participant-centered processes. eConsent has emerged as a pivotal advancement in the clinical trial industry, revolutionizing the traditional paper-based consent process and making participation possible for previously unreachable populations and patient demographics. This webinar offers a wide-ranging exploration of relevant regulatory compliance, as well as digital inclusivity, data security, participant comprehension and engagement strategies — all vital components in ensuring a seamless and participant-centric eConsent process. The featured speaker will cover the following topics: Navigating regulatory compliance, Bridging the digital divide, Securing eConsent processes, Confirming participant comprehension, Fostering participant engagement. Attendees will also learn practical knowledge to navigate the complex landscape of eConsent implementation, fostering a smoother and more participant-centric informed consent process in clinical trials. Join this webinar to discover the potential of participant-centered clinical trials through the diverse insights of eConsent, revolutionizing compliance, inclusivity, security, comprehension and engagement strategies.

BAJIS webinar seriesDate & Time Jan 24, 2024 06:00 PM in Universal Time UTCDescriptionSession 1: Prosthetic Joint InfectionSwitch Time ZoneOKCancelBAJIS Webinar Registration - 24th January 2024, 6pm GMT

In Canada, most health information systems are unable to capture gender, sex and sexual orientation data beyond a single sex or gender field. Consultations with the provinces and territories, as well as with major Hospital Information System (HIS) and Electronic Medical Record (EMR) vendors, revealed that there are no commonly agreed upon data standards for gender, sex and sexual orientation concepts. Data collection is therefore fragmented and incomplete and gender diverse individuals are largely invisible within the health care system, which subsequently impacts the quality of care that they receive, as well as their accurate representation within health system analytics. To address these challenges, the Canadian Institute for Health Information (CIHI) is establishing the first pan-Canadian gender, sex and sexual orientation (GSSO) data standards that are fit for purpose across all health information needs, including clinical care, care organization operations, health system planning and population and public health. These standards are based on British Columbia’s Gender, Sex and Sexual Orientation Health Information Standard and align with those produced by Canadian and international partners, including Statistics Canada and Health Level 7 International (HL7). The implementation of these standards will be a transformative step towards building a more patient-centered, inclusive, and interoperable health care system for Canadians. Presented by: Shannon O’Connor is a Program Lead in Data Standards at the Canadian Institute for Health Information. She has over a decade of experience in digital health, health data analytics and data standards development, including in the areas of mental health, opioid-related harms and gender, sex and sexual orientation. Shannon is passionate about using data standards to help advance interoperability and developing standards that contribute to a safe, equitable and inclusive health care system. She is a member of the HL7 Canada Council and a co-chair of Canada Health Infoway’s Sex and Gender Working Group. Dan Simic is the Manager of the Health Information Standards unit with the Conformance, Integration & Standards team at the BC Ministry of Health. Dan's current focus is around standards development, governance, and implementation and he gained experience in health care during his eighteen years at the ministry working in PharmaCare, and the Medical Services Plan, and recently in standards development at the clinical and administrative level. The GSSO standard represents an important step forward to how the health sector collects and uses gender and sex data, both to provide healthcare services and create policies for a more inclusive reflection of the diversity of people who live in British Columbia.

We are delighted to invite colleagues to register for our latest SPSP Perinatal and Scottish Perinatal Network webinar. This webinar will explore the importance of perinatal team collaboration and how quality improvement approaches can support reliable delivery of person-centred, evidence-based care. The aims of the webinar are to: Share key themes from national learning of extreme preterm births at 22 weeks gestation. Provide an overview of new national guidance on extreme preterm births. Describe how the SPSP Perinatal programme can support teams to use quality improvement approaches to optimise outcomes for preterm babies.

Please join us for a seminar that will discuss how engineering, biomechanical and medical assessments can be used to support or refute a personal injury claim involving a concussion diagnosis. Understanding the likely physical circumstances of the incident, as well as the forces and motions experienced by the Plaintiff can be an important first step when evaluating injury causation. Dr. Zandi will provide an overview of the various liability assessments that forensic engineers can assist with in the context of Occupiers’ Liability Claims. Dr. Gooyers will review the biomechanical techniques that can be used to establish head impact severity and risk of mild traumatic brain injury, such as concussion in various types of personal injury claims. Dr. Dost will address the newly published American Congress of Rehabilitation Medicine (ACRM) criteria, which expands upon previous criteria and presents a unique set of challenges with diagnosis and how personal injury files should be approached moving forward.

Join this informative webinar to explore lupus solutions and real-world treatment impacts through a discussion on patient aspects and the role of technology in streamlining research efficiency. Lupus is a complex disease with diverse manifestations, limited treatment options and inequitable impact on the affected population. This makes research into patient experience, treatment patterns and long-term clinical outcomes particularly challenging. High-quality real-world data (RWD) can enable researchers to assess the current disease burden and generate evidence on the impact of new and established treatments in a highly efficient way, including exploring new hypotheses and capturing long-term outcomes. “Ideal” sources of RWD for Lupus would include the following components: - Demographic and socioeconomic data - Deep clinical information on disease manifestations - Health care utilization, including treatment information - Long-term clinical outcomes, including patient-reported outcomes (PROs) Join Alira Health’s Real World Solutions experts and external partners from FORWARD — the US national databank for rheumatic diseases — for a deep dive into Lupus RWD.

Sightsavers and the Royal Society of Tropical Medicine and Hygiene (RSTMH) are holding an online event on 23 January 2024 to share and discuss learnings around how to eliminate the infectious eye disease trachoma. The event, which will take place from 2PM – 4PM GMT, will share the findings from a new collection of research papers – 'Trachoma: Accelerating progress to elimination as a public health problem' in the RSTMH journal International Health. You can read the research supplement here. The event will focus on two topics: How governments and their partners can use innovative approaches to speed up the elimination of trachoma, and How to address advanced trachoma (known as ‘trichiasis’) in affected communities. Speakers will be sharing the latest insights from major trachoma initiatives such as the Accelerate and Tropical Data programmes, and attendees will have the opportunity to discuss these during a series of Q&A sessions. This collection of papers is the last to be published as part of a three-year partnership, in which RSTMH has used its scientific journals and other communications channels to help disseminate the key outputs and learnings from Sightsavers’ lead programmes.