National ALS Registry: Learn How You Can Join the Fight Against ALS

Healthcare1/25/2024 9:00 PM

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The National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States as well as investigating the causes and risk factors for this disease. The Registry also connects persons with ALS with clinical trials and epidemiological studies, funds research domestically and globally, and has a biorepository (i.e., National ALS Biorepository) where persons with ALS can donate their blood and saliva for research. This webinar will inform and educate persons with ALS and caregivers the importance of joining and being counted. Persons with ALS are the heart of the National ALS Registry and their data allows researchers to gain insight and advance research on genetics, biomarkers, and environmental exposures. With your help, we can potentially determine what causes and implement prevention measures in the future.


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Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS)

Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS)

The Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS) is dedicated to translating scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease. With support from The ALS Association, NEALS provides up-to-date information on federally and privately funded clinical studies focusing on ALS and motor neuron diseases. NEALS also facilitates collaboration among researchers and offers educational webinars for ALS patients and researchers.