Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS)

Advances in Cough and Secretion Management, is the second webinar in the "Advances in Respiratory Care in ALS" (ARC-ALS) 4-Part Webinar Series presented by NEALS and the NEALS Respiratory Care and Ventilation Committee.Join us for the second session in the webinar series, which will delve into advances in cough and secretion management in ALS. This webinar highlights the application of the validated Oral Secretion Scale (OSS) to predict tolerance of noninvasive ventilation and to manage secretions effectively. Expert discussions will cover: • Indications for Oropharyngeal Suctioning: Identifying when this intervention is necessary. • Mechanical In-Exsufflation: Differences in application between bulbar and nonbulbar ALS patients. • Contraindications in Airway Management: Essential precautions and considerations. • Pharmacological Agents: Exploring pharmacological approaches to secretion management.Presenters: Tamara LeBlanc, BSRC-RRT, Pamela A. Cazzolli, RN, and Benjamin Rix Brooks, MD, FANA, FAAN.

The National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States as well as investigating the causes and risk factors for this disease. The Registry also connects persons with ALS with clinical trials and epidemiological studies, funds research domestically and globally, and has a biorepository (i.e., National ALS Biorepository) where persons with ALS can donate their blood and saliva for research. This webinar will inform and educate persons with ALS and caregivers the importance of joining and being counted. Persons with ALS are the heart of the National ALS Registry and their data allows researchers to gain insight and advance research on genetics, biomarkers, and environmental exposures. With your help, we can potentially determine what causes and implement prevention measures in the future.